Originally Posted by Digitalx

Hello, new here. Will try and make this short and to the point.

Last year, March 29th 2017, was the start of a bad gut infection that came out of no where. Had the full work up after it wasn’t subsiding on its own. Colonoscopy, stool samples, CT scan, the whole 9. They found a lot of inflammation during the scope, even in my small intestine. Said it could possibly be Crohn’s. Ended up headed to an IBD specialist who assured me he was sure it was a bad bug. Follow up inflammation check 3 months later, it was all cleared up.

In the midst of this, I had my first neurological symptom on June 17th 2017, starting in my face and quickly went body wide. Twitching all over, strange feelings in hands and feet, burning, numbness in hands, etc. juggled through about 4 neurologists who all shrugged me off after clean EMg’s and brain MRIs, I finally saw an SFN specialist. Skin biopsy proved I was positive for SFN.

Long story short, none of the extensive testing I had done at mayo showed up with anything, except for a “normal” b12 of 344. I felt this was low, so have been supplementing since. He said he thinks the gut infection was the cause of this, and I should heal up in time. Said this damage usually peaks, and then slowly starts to heal. Nothing I read online speaks much of SFN healing, nor do I find recovery stories. I do have to say, that I feel this peaked around October of last year, and symptoms have definitely improved. They are very up and down, with new ones popping up and leaving so it is very hard to tell. The severity of the worst of my symptoms are definitely better, though. Is this a good sign?

Do people really recover from SFN? What does nerve regrowth feel like?