Originally Posted by bchgrl

Hi!
I’ve had a few updates since my last post.

I went for a follow up with my Neurologist here in Kansas City December 18th. He didn’t like what he saw. He thought I’d be stronger than I was since my last appointment and the thymectomy. He admitted me to the hospital for Plasmapheresis treatments. He said he may be going to an extreme, but he wanted me to gain strength before the holidays and trying to get to Florida. I was happy he took the more aggressive approach. I had 5 treatments and was released on the 6th day. My first day home I felt better than I had in months! I woke up the 2nd day, however, really bad. I missed all Christmas activities. But since then I’ve been better than before the treatments, just not as good as the first day. I’m just on that daily roller coaster we MG patients live on!

Annie, I wanted you to know I have an appointment with Dr. Weiss January 8th. I’m anxious to see what he says!

Happy New Year!