Quote:
Originally Posted by Colessurfer
Hi
I was admitted to hospital as was experiencing double vision. In A and E the neuroscience registrar diagnose MG. I was discharged with pyridostigmine 3 days later still double vision, I have a neurologist appointment to confirm diagnosis. I am really worried as I am having pains downs my neck, is this a sign it’s spreading to other areas of face etc? A couple of questions
1/ I am a headteacher and am struggling to see how I will be able to carry out my duties as it’s a really high pressured job
2/ I have heard horror stories about other meds that have serious side effects.
3/ I am wearing an eye patch as it stops the double vision and stops me feeling sick
Any advice or guidance appreciated
Thanks
Dave
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Did they do a blood test on what type of MG you have?
Mine is ACHR the most common type started with
Double vision which lasted for 3 weeks before starting to improve,
Had no pain during the symptoms it took the Neurolgist’s 3 months to diagnosis
my mg they were treating as I had a stroke !
I was referred to a specialist on MG in Kansas City Kansas
Then a surgeon which he has removed my thymus gland !
I am getting better still on mestion & steroids
Hope to come off the meds soon!
Take care and listen to your body one day at a time !
Good luck and prayers 🙏
Alton