cosmoe, Are you only on Mestinon?

With MG, it's always best to stay ahead of any weakness. If you are going to be out doing something, then take Mestinon before you go out. The weaker someone with MG becomes, the longer it can take to recover. So you want to keep MG on an even plane, not a roller coaster ride!

You might need to talk to your neuro about increasing how many times a day you can have that little dose! Since Mestinon kicks in after about 20 - 30 minutes of taking it, and then wears off about 2 hours after that, you probably need more during the day.

Please talk to your neuro about all of this, okay? To me, it sounds as though your MG is not sufficiently treated.


Annie