View Single Post
Old 01-29-2019, 09:28 AM
CRPSbe's Avatar
CRPSbe CRPSbe is offline
Member
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
CRPSbe CRPSbe is offline
Member
CRPSbe's Avatar
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
Default

Quote:
Originally Posted by Deebaforlove View Post
Carlee. I have great news for you. I am 44yo and was in a near vegetative state for 4.5 years with SYSTEMIC RSDS& SYSTEMIC Autonomic Neuropathy. Now i had only began learning how to walk again Jan2012. I got pregnant July 2013th. i had alot of problems with preterm labor as you know that your body over reacts to stimuli. WELL< my son was born at 34 weeks and He was small, but healthy. And heres the great news, my pregnancy put me into a remission of sorts. I got stronger, my pain was manageable at 25mcg per 48 hours of fentanyl which i began at 125mcg per 48hours . SO yes, great news is that pregnancy can put you into a remission ( As you know our remission is not total remission, but functional compared to nonfunctioning) Anyway i stayed in this highly functioning state for nearly 3years until i got pregnant with my 3rd son ( 2nd baby post RSDS ) and his deliver was horrible he was dead due to shoulder dystocia and they caused alot of trauma to my rectum and pelvic floor trying to get him out to resuccitate him . THEY DID> HES PEFECT NOW> HOWEVER< the trauma i suffered physically during his birth has me in almost full blown RSDS again. Im trying to get pregnant again to force a remission as im terrified ill end up where i was before and i have these 2 young babies that need me. Ronin is 4yo and Kade is 20mo now. They are jumping at me now which is why the majority of this is spelled improperly and lets not talk about punctuation lol. ANYWAY GO FOR IT AND IF YOU GET PREGNANT< KEEP MOVING> ALWAYS KEEP MOVING NO MATTER HOW MUCH IT HURTS> The reason i was fully bedridden is because i spent 7weeks int he hospital and they did not move me becuase it hurt sooo bad. BUT THATS WHAT CAUSED ALL OF MY JOINTS (ALL) of them to go into full contracture. I WAS FROZEN BUT FULLY MENTALLY AWARE OF WHAT LIFE I WAS MISSING AND JUST WANTING TO DIE> IT WAS HORRIBLE< SOOOO KEEP MOVING PPL> IT WILL HURT AND HURT BUT IMAGINE BEING FROZEN BUT AWARE> KEEP MOVING OK AND IF YOU CAN GET PREGNANT< MAN< GET PREGNANT> I wish i understood why it puts you in remission, but i think it may have something to do with the higher functioning immune system. NOT SURE< IF YOU KNOW ANYONE< NEUROLOGIST ETC>please please tell me. THank You..... and good luck lovey, Deeba

Pregnancy doesn't put everyone into "remission", I'm afraid, so just blindly encouraging women with CRPS to get pregnant, to me is a bit much.

I'm almost menopausal, myself, so pregnancy is OUT of the question for me. I have never had the "opportunity" to get pregnant either.

There is no "cure" for CRPS. Pregnancy is not a treatment.

I am glad though that your outcome has been favorable. I hope you will continue to do well.

Unfortunately that's not very realistic for some of us.
__________________
All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
CRPSbe is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
ger715 (01-31-2019)