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Old 02-06-2019, 10:49 AM
lurkingforacure lurkingforacure is offline
Senior Member
 
Join Date: Feb 2008
Posts: 1,485
15 yr Member
lurkingforacure lurkingforacure is offline
Senior Member
 
Join Date: Feb 2008
Posts: 1,485
15 yr Member
Angry Frustrating

I haven't been able to learn anything, and good luck getting someone to script this for you if you want to try to do a one-man trial. Our neuro wouldnt' do it, but agreed to reach out to an oncologist to see if he would do it with our neuro's supervision, but the oncologist declined, too.

Then we tried our alternative practitioner, but he also declined.

As a last resort, we contacted a teaching facility in another country (friend of a friend of a friend who knew someone....) and begged the neuro there to script it. No dice.

We offered to sign all kinds of waivers, releases, hold harmless agreements, whatever was needed to address the fear of being sued, but it made no difference. It was and is so very frustrating.

If anyone has an update, please share
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