Quote:
Originally Posted by LouLou1978
How long have you had symptoms for? Mine has been about 7 years. My neuro was the one that got ivig through, I've been really lucky. prof Anand didnt recommend for me but did for my sister. She didn't bother as hers doesn't affect her, she has also had it for 7 years, I think sometimes it's environmental, something we have both had contact with.
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I’ve had symptoms for about twenty years it started with a tingling in my hands it slowly developed into throbbing burning pain it then progressed to my feet then my face and my trunk and then in legs and arms a few years ago my nerves started firing off with electrical shooting pains and sensitivity got worse, since the ivig was stopped ten months ago it has shown it has progressed a bit more which the ivig has been masking. They can’t find a cause.
It’s all possible it could be environmental What are your symptoms and what did they start with?
SW xx