We have joined the dystonia ranks, and our neuro gave Botox which worked for one location but not the other. I have read you need to get it into your system for 6+ months sometimes for it to really work, so we'll see what happens with future doses.

I wanted to mention that our neuro said dystonia was actually made worse by sinemet, which is another reason he gave for keeping the dose down (we have repeatedly asked for an increase but he won't do it. I get why, though, more sinement = more delusions/hallucinations and we have enough of those, and apparently more dystonia).

Just thought I'd mention about the sinemet/dystonia connection, as I had not read about that before our neuro told us.