Quote:
Originally Posted by cdwall
I'm happy for the OP. Neridronate therapy is working for many apparently. I had pamidronate years ago, a little over a year after CRPS started. Appropriate regimen. Very close to the new one. It didn't help.
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I have had the Pamidronate offered, and I am holding it out as I feel right now I am managing and I don't want to "Waste" a treatment I may need more if things suddenly advance.
Neridronate is being tested in Italy. This is a very real potentially beneficial treatment. But, as with the pamidronate, it can work very very well for some and not at all for others. The doctor who offered me the treatment was very clear, most of his patients have huge pain relief with the pamidronate. But not all.
Pain relief is NOT a cure. It is an effective treatment. The researchers doing the clinical trials are hoping that the neridronate will be even better than the pamidronate and we can all hope that they are right!
But there is no cure. There is remission.