Hi Alison,
Welcome to the board.
I get swelling from the knees down, but mine is worse after I've been up for awhile not first thing in the morning. I have found that lying down with my legs elevated above the heart helps to take it down a little. Also, it helps me if I lay down and do leg lifts. RSD affects people differently and I when I first got it in my hand, part of my hand swelled while part atrophied. Weird. I hope others on this board can help you more.
Linmarie