Hello,

My 25 year old son was recently found to have calcifications in the Basal Ganglia - he is due a 2nd MRI in May. I am desperately researching EVERY thing I can find out about it as it a rare genetic disorder with no cure. My son has started showing symptoms (fainting, mood swings, verbal aggression, some involuntary movement but NO seizures) I am flying to Cuba after the MRI - as I found a Neuro Clinic there (and they have cures for things the rest of the world can only dream of -hopeful - but a realist)

I've read there are studies that I'd like to get my son involved with. Any other sufferers, or family members that know of any advances, research or new therapies, someone I can contact. I am not wealthy but will sell everything I own for my only child's treatments and well-being . I beg those that know ANYTHING to share their findings (whatever I find I will share with all that care for it)

I thank all of you in advance,

Jenny
I will not rest until I find a cure.