Please engage an attorney. You have a chronic progressive condition, pray that it goes into remission, but plan for the long haul that it might not. I held out believing I did not need one & hired one only when I was fairly sure CRPS had spread. Waiting was a huge mistake. Lawyers keep us from being used & abused by Worker’s Comp.

I was cut off from aqua PT as soon as I was improving. I believe I could have gone into remission at this point. I was misinformed by the PT therapist that she would appeal. She didn’t, so I ended up on my own trying to do my own land & water PT. It was not successful. Had I had an attorney I might have avoided this mistake.

Get copies of all doctor’s notes. Review them. Correct errors in them immediately.

Take photos of your limb in the doctor’s office at every visit. Bring a witness. Have the witness take notes. Bring a laser thermometer to every appointment to take temps of limbs, ask that it be noted. lack of symmetry between opposite limbs is a hallmark of CRPS. You want this documented.

Keep a dairy. Record everything. Your sleep, your pain, your eating habits.

Take daily photos of your limb (s) normal, in a flare, etc. set up an album on your device. Pictures over time are very revealing. In my case, despite lots of exercise, the pictures I have show deteriorating muscles.

Keep a running list of your doctors with dates.

Keep a list of everything you buy with receipts, like a shower chair, compression stockings.

Get a filing system set up now. A file for every doctor. A file for everything above.

Get a copy of your accident statement, if you have one. Make a folder for that.

My files are a mess, because I did not think it mattered, plus I was in too much pain to think clearly. Now I am afflicted in 4 limbs, my stomach & my eyes, everything is beyond the beyond hard for me to do. If I had known how difficult things would be I could have asked someone to set the system up for me.

I will try to think of more, but I am too tired to finish.