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Old 09-24-2006, 10:05 PM
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Braindrain Braindrain is offline
In Remembrance
 
Join Date: Sep 2006
Location: Baltimore, MD
Posts: 128
15 yr Member
Braindrain Braindrain is offline
In Remembrance
Braindrain's Avatar
 
Join Date: Sep 2006
Location: Baltimore, MD
Posts: 128
15 yr Member
Thumbs down been there, done that!

They're called "catamenial seizures". I know, because I had them myself,
for years. It always happened either the first day of my period, or the
day before my cycle started. And, mine were always grand mals.

I did try to take "the Pill" to stop my period-since I couldn't seem to get
the seizures under control-but the AEDs I take made the "Pill" useless.

Now, having said that, I should tell you that I haven't had anything like
that for several years. Probably because the combination of Keppra and
Dilantin is finally controlling my GMs.

The only thing I can suggest is to have your neuro and your GYN work
together to try to find a solution for you. That's what they had to do
with me-my neuro and my GYN sent messages back and forth trying to
figure out what they could do for me. Eventually, I stopped having the
seizures during my period and then they stopped altogether.

Good luck!
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Gina

congenital hydrocephalus, porencephalic cyst,
epilepsy, lumbar spinal stenosis, degenerative
disc disease
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