View Single Post
Old 05-28-2019, 10:17 PM
braindamage braindamage is offline
Junior Member
 
Join Date: Jan 2019
Posts: 12
5 yr Member
braindamage braindamage is offline
Junior Member
 
Join Date: Jan 2019
Posts: 12
5 yr Member
Angry PCS 9 years - at the end of my rope

So I'm just lost and looking for answers *administrative edit* Not to look like a scream for help. I'm no *****. I'm just completely lost and disgusted by life and how weak the human brain and body was designed. No answers for 9 years. Had a moderate tbi glascow coma scale 11 in 2011. Was fine for 3 years and then boom. It hit me. Really bad cognitive decline. Sleep worsened, suicidal thoughts, anxiety, depression, heart palpitations, chronic debilitating fatigue. No getting out of bed until I've slept for at least 14 hours. Can't sleep 8 and get up and feel normal. Even with 14 I still struggle so much. Totally not a life worth living.

I'm only 26. TBI happened (car accident, not my fault) at 18 or so. My life is ruined at such a young age and I don't see myself living until 60 or 70 like this. It's pointless. Anyways, this leads me to what I've done as far as treatment. I went to neurologists and had several CT scans and MRIs. Nothing. They said my brain looks perfectly healthy. Sleep study showed nothing wrong. So family doctor, all blood looks fine, chest and heart look fine. Went to a endocrinologist and had all hormones, pituitary and otherwise, tested and they all came back normal. Went to see a specialist in Philadelphia and he wanted to offer me medication for Parkinson's. Worthless trip and waste of money. Seen psychiatrists. Not into drugging myself for 50 years til I die. I am currently on Klonopin and an SSRI which only makes me feel 30 percent better than if I am not on them. I refuse to choke these down for the rest of my life. No history of mental illness on either side of my family **** that ********. It's all caused by the TBI, regardless of what psyhcs wanna tell me.

Anyways, I'm just SO DISGUSTED with the standard of care for this situation. Oh it's just a chemical imbalance.. but serotonin deficiency is a myth with no tests to prove its real and we'll just drug you. Oh it's lack of blood flow which can be fixed with there herbs and nootropics.. NOPE. Didn't work. Oh it's probably NEUROINFLAMMATION.. but we have no tests for that or know of any way to treat it. Could be this could be that. Could be diet or amino acid deficiency.. I've tried keto, paleo, anti inflammatory diets.. Nothing. Nothing has worked.

My next steps are to go to the mayo clinic and get a DTI - SWI MRI done to see if there is anything that can be found there. Then after that, I will be going to get a SPECT scan done and get hyperbaric oxygen therapy done for like 16,000 grand (since it's not covered by ****** insurance even though there is proof it alleviates symptoms). Then after that, if I haven't gotten to a point where I can function in life.. I will be going either to Ukraine or China for pluripotent or fetal stem cell therapy. And after that idk.. give up. Do drugs. **. Life's a joke. Anyways, rant over. Any advice would be appreciated. I'm just so lost and aggravated and what life has become and that this is even possible. It's not depression go f yourself to my psychiatrists and therapists. Thanks for all the help anyone can help. I'm miserable and desperate for anything that can help. There is a lot of knowledgeable people on here.

Thank You

Last edited by Chemar; 05-29-2019 at 09:42 AM. Reason: Sorry but have to edite per language & guidelines re suicidal posts.
braindamage is offline   Reply With QuoteReply With Quote