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Old 06-26-2019, 07:34 AM
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janieg janieg is offline
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Join Date: Jan 2014
Location: Maryland
Posts: 792
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janieg janieg is offline
Member
janieg's Avatar
 
Join Date: Jan 2014
Location: Maryland
Posts: 792
10 yr Member
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My boss' 20 year old daughter who had to drop out of college because of vertigo and neuropathy has just been diagnosed with E.D. It was diagnosed with an EMG test that detected nerve impact due to hypermobility of her joints.

I don't believe they think the vertigo is related to it, but they strongly believe that's the cause of the bad burning pain she's been experiencing in her arms and hands.



Quote:
Originally Posted by caroline2 View Post
I was trying to find an E.D. area here but could not...maybe I just didn't see it. Anyway a person on another group is seeking help for their young daughter's recent dx of E.D. I heard about the disorder and PRP a couple weeks on my medical radio program and did a search and found a lot of info. There is HELP.

Joint hypermobility syndrome (JHS) | Ehlers-Danlos syndrome (EDS) hypermobility type (EDS-HT) - Prolotherapy.org

There are PRP workers/doctors in the U.S. who do this work for Ehler's Danlos.

Here is one location in the U.S.

Prolotherapy for Ehlers-Danlos Syndrome – Caring Medical
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