I was dxd in 2003 but symptomatic for two years prior. I had bilateral DBS in March 2018. Prior to DBS I vacillated between being stuck in the chair and severe dyskinesia. I'm doing very well now. I was fitted with Boston scientific Vercise Gevia DBS system with rechargeable battery. I had the whole system installed in one four hour surgery under general anaesthetic, done in London. It's not available in Ireland yet, which is where I live. It has been life transforming surgery for me.

Initially I travelled back to London for programming but now I have found someone locally who is willing to train in programming my device. I think anxiety is an issue for most pwps. Initially I had some relief from it post surgery, but lately it has returned again. I find meditation and exercise helps.

It's my understanding that new techniques have improved the success rate of DBS under anaesthesia and in fact it is more preservative of speech function.

I'm happy to answer any further questions, just pm me.