Hi Everyone

I have had nerve pain on and off since 2013.
One day in 2013 I woke up with a small cyst on my vulva which ruptured on its own and within 24 hours I had severe stabbing and aching pain. This pain spread slowly but each day I was getting worse. The scariest symptom for me was when I would see an OBGYN who would examine the skin on the vulva and every time someone pressed on the skin, inflammation immediately followed. Everyone told me I had vulvodynia, but my symptoms don't match it. I never get burning, only electric shocks, sensitivity, crawling under the skin.
It was so scary to have pain and visible inflammation that I developed nocturnal panick attacks.
I was lucky I started amitriptyline 3 weeks after onset, but it still progressed to sciatic and pudendal pain. I was lucky that after 3 years of 50 mg amitriptyline and 300 mg lyrica, I weaned off all drugs and was pain free. Normal sensation returned.
Sadly, it came back in 2017, only 1 year and a half into the remission. My medication, especially amitrptyline no longer works as well this time ... and am very worried.

Can CRPS start in the intimate area? And does anyone get visible inflammation after touching/compression ??



Thank you.

I live in UK btw