Quote:
Originally Posted by Julie K
Today has been one of those down days. I just want to cry all day. I am so tired of hurting. I keep telling myself tomorrow will be better. I haven't slept hardly at all this week. Which probably doesn't help how I am feeling.
Then I tell myself "Others are suffering more than me, quit feeling sorry for yourself". But it just doesn't really help how I am feeling. I want to be brave and strong but somedays are just so hard. I am strong in my faith, but somedays it just feels like I am walking alone.
I have a husband of 27 years who is very supportive, but he has got to get tired of dealing with my illness.
I am sure plenty of you go through the same thing. How do you shake it or do you just bear with it and know a better day will come?
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First of all

You're not alone. It gets so frustrating. I know that my pain is nowhere near the level it used to be and there are many people here in far worse condition than I am. But when I can't sleep because of the burning and tingling and the RLS type symptoms it doesn't help does it. I almost think the pain would be tolerable if it only bothered me during the day. I'm usually busy enough to ignore it. It's at night that it bothers me. And I *hate* that!
I just ride the bad nights out. That's all I can do. I have Tramadol and I use it. Thank goodness I get almost 100% relief. It does make for a depressing day the day after a bad night though. I'm so tired I can't stand it. I don't cope well with even a little sleep deprivation.
Yes, I try to keep focused on the fact that this too shall pass. It always does. But lately I've been thinking am I going to have to put up with this for the rest of my life? And is it going to eventually get worse? That's been getting me down a bit.