Thread: My SFN Story
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Old 07-08-2019, 06:25 PM
GeorgeQ GeorgeQ is offline
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Join Date: Sep 2018
Posts: 9
5 yr Member
GeorgeQ GeorgeQ is offline
Junior Member
 
Join Date: Sep 2018
Posts: 9
5 yr Member
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Quote:
Originally Posted by DavidHC View Post
I hope the CBD helps you like it has helped me. As for the Keto diet, it was the best for me, but it was very difficult to stick to. Let me elaborate. It reduced many of my symptoms and I felt good on it. But it was a mixed bag. In addition to being difficult to stick too, because without carbs I often had low energy (though not always), my uric acid serum levels went up though I'm not certain of the connection, and I would shake every day. I'm not sure why the latter would happen but likely because I didn't have enough carbs in my body. I have some other theories. I would say it's worth trying to be sure. I think I want to go back and try it again for another 6-12 months and see how it goes this time. I'm now eating more carbs and even sometimes have grains, though that usually means just rice, never any glutenous, and no dairy, and my symptoms are worse. But I never shake or vibrate like when I was on the Keto diet.

As for the muscle weakness and shaking, yes it happens to me too. When I try to do strength training, say some core exercise like a plank, and I have to stay in one position with my muscles engaged, I shake and sometimes it gets violent. In the next few weeks I'm going to try to get back to the gym and to workout with weights more like I used to. I have to be careful. I think it's the stabilizer muscles that are most effected. I have pure small fiber neuropathy, but as my neurologist pointed out more and more research is showing that SFN does in fact damage muscle tissue and it's not so cut and dry with small fibers having no connection to muscle tissue. But it doesn't seem to damage large muscle tissue to be sure.
Exact same thing happens to me, some strength positions my muscles start shaking, other think that bothers me a lot is allodynia, with my jeans or the bed sheets, I am not trying keto anymore because I am not sure if it actually works, but I am paleo, I am trying prolonged fasting as well since I read a lot of benefits including inflammation markers reduction, I will let you know how that works. Will start fish oil supplements, CBD oil and b12 supplement , I am tired of going to doctors so I will focus on getting better not getting a diagnosis.
As you said SFN should affect muscles based on my symptoms, also I read that veins are controlled by the small nerves so might be the case that not enough bloods go to the muscles, just a theory after I read a lot of info,
hope you are better these days!!
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