I know i dont know you... .One more thing i would recomend... is taking pictures... If you have a flare up... It may be useful... Reason being we arent always symptomatic... So if you do have days where you can physical see the flare i would capture that... Further proof of the pain you are going through...
I will keep you in my prayers!!! I am sure things will work out just the way they are suppose to....
Best Wishes