Quote:
Originally Posted by Dmom3005
Blue
Do you also have an neurologist. Or have you had an EEG in the last couple of years? If you have absence seizures, its very much possible the disassociation feeling you have, is more of an feeling that you are having from going in and out of Absence seizures. Because they can go on for hours. Happening, for a minute or second, here and there. But continuing for hours.
This is something that I had as a kid, and its a form of the seizures my
son has had. He had them as a 2nd grade specifically. An example is
that they would be doing math. And he would space out, and come back.
His teacher, would know he had done this, specifically because she was
paying attention, he wouldn't answer her for a few seconds or minutes.
Then he would come out of it. And not know what she had taught the
class. So she would re teach him the lesson. THis happened for a number
of days or weeks. So she let me know it was going on. I made
an appointment, and let his neurologist know. We raised his medication
to try and help him.
THis also is something some of my friends kids, will do in status and its
something they then have to be brought out of by special medication.
I'm not trying to scare you, But this is the one form of seizures
that does come on the EEG.
I don't know if your taking any medication for the seizures, but
the lamictal can be used for seizures too.
Donna   |
Donna ~ That was very informative, thank YOU !! My new psych doc also approached me with the thought this could be more seizure activity than dissociation.
I usually have an EEG every year. It's all abnormal with slowing, spiking and slow waves. They have never captured an actual seizure during the EEG. I have also had numerous sleep studies but they haven't captured them either, which is a disappointment. My neurologist informed me that my EEG is indicative of temporal lobe epilepsy, since that is where all the abnormal brain waves originate out of, that and my central brain.
Did you grow out of your experience with this? How are you doing now? Thank you soo much for relating to my story about dissociation vs. seizures. It's a work in progress.
I have been on numerous seizure meds and nothing really worked for me, so my former psych doc of 30 years, flipped over to the possibility of dissociation. However, this is the first time anyone has said to me that an absence seizure can last that long, which is opening my eyes to a new possibility I never thought about before. Thank you, Donna, for this new information !!
So, absence seizures do not show up on EEG's then? I'm guessing just the predominant seizures can then. I had a neurologist try startling me during an EEG and nothing happened. He said that rarely will he actually see a seizure on an EEG. I had an MRI to check for changes in my brain by my neurologist and the finding was alot of white spots but otherwise normal for my age.
There is conjecture that my type of migraine with aura is associated with seizure disorder and same with the constant daily vertigo and Menieres Syndrome. There appears to be an overlap with these three constellations, per the neurologists I have seen in the past.
I also have an EEG that I wore home for 48 hours and....... nothing showed up, but I did keep pressing the button when I went into an altered state and shapes changed, etc.
So, my new psych doc is trying hard to keep me on Lamictal as he feel that is the best med for mood and seizures. Fingers crossed I can stay on the Lamictal.
I live with altered perception of vision and reality daily, have since childhood. Buildings move, sway, change colors and appear very odd looking. I suffer from the Alice and Wonderland effect where I feel too large to be in a room or a car or too tiny or suddenly the room moves far away from me or too close. The landscape shifts and the curbs change heights and move around. There's alot more but don't want to take up too much time talking about this. These are all experiences I have had since childhood. I also was a very slow learner and comprehension was almost nil. My friends and family always mentioned that I was a space cadet with my head in the clouds. I had tutors year round, was always stuck in summer school and I would just sit and hear the teacher talking to me but never completely understood it. I still cannot read for very long. But back in the 50's, there was very little help, like today. Your son is soo lucky to have been put on the right meds to help him.
You are not scaring me, Donna. I applaud you for coming forward and picking up on what I was saying and helping me !!! ((( appreciation hugs ))). Please keep talking about this, if you feel comfortable, as any input is invaluable. I would be very interested in your experience with this in conjunction with BiPolar.
Take care ~
Blue