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Old 07-21-2019, 03:47 PM
alfredsr7 alfredsr7 is offline
Newly Joined
 
Join Date: Jul 2019
Location: rhode island
Posts: 1
3 yr Member
alfredsr7 alfredsr7 is offline
Newly Joined
 
Join Date: Jul 2019
Location: rhode island
Posts: 1
3 yr Member
Default reaching out

Hello all, I am new to the group and here is my questions. I am reaching out to anyone who has had any experience with the drug soliris. I have been on IVIG since 2016. I get it on a monthly basis for five days a month. Lately there has been a shortage and my Doc want to change me drug to Soliris. I do not know enough about it and neither does she. I know it has some side effect.

I know there is a process in geting it. But I don't know if it works or if its worth the change. I would like to talk to anyone who has any information. How much does insurance cover? I have a lot of questions and don't know where else to turn for answers. I will give my number and whoever want to talk about it and give me some information. Thanks, Al
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