I feel for you and Derrick. What troopers!
fondly
bobby

Blue

The alice in wonderland effects you talk about I believe are also another
thing that are talked about in seizure world. But also the aura's you
are having could easily be before seizures. My son has simple and
complex partial seizures. And a few other kind and he used to have
aura's before his seizures a lot of the time. He also has migraines,
so does all my family. Me included.

Some of the things you write about sound a lot like complex partial
seizures, which usually means you go into a altered state and don't
realize you are doing the things you are doing. In my son's case
as a child or teen. He could carry on a full conversation, and even
do things that were like he was with me completely.
The only way I knew he had no idea he was doing these things. Was
that he would then say 30 minutes later. Make a statement that would
show me he had no idea he had done something.

Like one day he had been at a soccer game, he had a seizure, we went to taco bell, and behind us in came a coach, and his son. My son and the coaches son carried on a conversation. Got a drink and all. Then about
30 minutes maybe later. He went up to get a drink, and the coaches son who was sitting in the back section. Came up and got a drink, I heard him say, He when did you get here. And they carried on a conversation.
The coaches son, looked at me, and I just shook my head and showed I heard the conversation, Derrick came back to the table. And said, I am guessing I had already talked to him. I said, yes but guessing you dont remember. No mom, I don't remember at all. I said, his dad is here too.

Derrick has tried about every medication, His VNS is what has worked the
best. He is getting ready for his to be replaced for the 3rd time on Wednesday.
Donna