Quote:
Originally Posted by Dmom3005
Blue
The jerking of the arm, sounds very much like an simple partial or an
ugh, I can't remember the other name of an jerk seizure. The ones
you don't remember things for hours at a time, well those could easily be complex partial. And it would be like the ones Derrick can have, but in his case he would probably go to sleep in the middle and wake up in the middle. He is also known to be able to walk around in them and go places. Like crossing an street. So the fact that you were in a meeting, and someone smiled or talked to you and you don't remember makes sense to me.
It also may be part of the reason, that people are acting funny around you.
It may not be that they don't want to be friends, but that you aren't responding when they try. That was a lot of Derrick's problem. But he had an fantastic
1st and 2nd grade teacher. She pretty much taught the kids how to help him. They took good care of him, and watched out for him.
The zonegran and lamictal he is on right now are the two he has had the best luck with medicine wise. Other than dilantin.
The VNS, works for about 9 to 10 years, with its battery then needs replaced. The battery runs down. This is his third one. And he has been lucky its worked so well. 
Donna |
Hi Donna ~ I thought about this too, why people act funny around me. I have absolutely no recollection that I attended that meeting. I had thought of going but I never wrote it down on my calendar, which is another mystery. I did check with a few other people who went and they said they saw me there, but I was sitting off in a corner avoiding everyone which they all thought was odd, unusual behavior, as I am usually very outgoing. The one neighbor that originally brought this up to me I have known for a very long time in other senior homes and she said I hurt her feelings. I had wondered why she had been avoiding me lately. I did apologize but it didn't seem to make a difference with her,she still avoids me.
One other person I got close to for awhile here where I live now, mentioned to me that at times I am suddenly distant, remote and off-putting and she felt it was very difficult to be a close friend as I am never consistently the same, which caused her to feel I was unsafe to be around. Great
She now avoids me too.
I wish I could hang out with a close friend who could be watchful and let me know that either I am not there or something else is going on with me. This is why I isolate and keep away from people now. I have to hope that the Lamictal will work for me and hope that it will settle me down.
Your son is soo lucky to have you advocating for him and getting a community of people to watch out for him and help him !! That is soo special, to be able to celebrate the difference he brings to this world. I understand this, as no one celebrated my differences while growing up. I was shunned, ridiculed and avoided my whole childhood. I never understood why I was not like other kids my age, now I am getting a better appreciation.
I remember once I was sent to my aunt's school up in New England, as she is a Special Ed teacher. Then I was sent back home and I overheard her say to my mother that there is nothing she can do to help me as she does not understand what is wrong with me.
I had never thought much about this as being seizure driven until you brought it up. You have been an inspiration for me Donna in your willingness to come forward to help me. I cannot express enough to you how appreciative I am for you. Now I can take this new information to the appropriate doctor for better treatment options.
Blue