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Old 08-20-2019, 08:36 AM
bonyesz bonyesz is offline
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Join Date: Aug 2019
Posts: 2
3 yr Member
bonyesz bonyesz is offline
Newly Joined
 
Join Date: Aug 2019
Posts: 2
3 yr Member
Default Myoclonus-like twitching on all limbs while falling asleep 3 weeks after injury

Hello,

I have searched the forums for something similar but have not found a close enough match, any and all help would be very much appreciated.

Four weeks ago our 13 year old daughter fell backwards while running in a park and hit the back of her head from a standing height into the edge of a stone step.
Fortunately her hair in a braid somewhat dampened the blow but even this way she suffered what appeared to be subarachnoid bleeding above the right cerebellum. Because of the suspicion of bleeding she was transported to a neuro trauma unit. The bleeding was no longer visible on a CT repeated 6 hours after the first one (the radiologist was not sure whether we are looking at real bleeding or an artifact). She was diagnosed having a severe concussion and was released two days later.
About two weeks after her release she was making a fairly good recovery.
The only baffling symptoms started at that point and that is what this post is about.

We first noticed that she trips on her right leg while walking. She describes it as a momentary loss of strength in her calf muscles.
She also complains about her right arm "falling asleep" occasionally in a certain posture.

The bigger concern is the twitching that we started noticing about 10 days ago.
A few minutes after she closes her eyes to fall asleep she starts having twitches on all four limbs in sync, coupled with gasping breathing and contorted facial muscles. This goes on for about 15-20 seconds, then stops and starts again in a minute or two, with 5-6 cycles until she stops and enters a form of sleep. She then awakes a few minutes later and can't go back to sleep for a few hours.
If we wake her up during an episode she describes having very lucid, colorful and lifelike "dreams" , some of them that are set with her real field of vision (her room) in the background.

She had a sleep deprived EEG done a few days ago that included strobe light testing and according to the neurologist there are no signs of seizures, While that's great news, we don't have a diagnosis of what may be going on yet.

Any ideas on what might have going on would be very much appreciated.
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