View Single Post
Old 08-24-2019, 05:31 PM
claynorian claynorian is offline
Newly Joined
 
Join Date: Aug 2019
Posts: 1
3 yr Member
claynorian claynorian is offline
Newly Joined
 
Join Date: Aug 2019
Posts: 1
3 yr Member
Exclamation 7 months post traumatic headache and still getting worse

Hey guys. My pain is getting worse and is literally unbearable. This all started 7 months ago, after getting hit hard in a rugby game and then 3 days later when I was weight lifting all my symptoms came on.

SYMPTOMS: I have had some what positional headaches over the past 7 months (that have become less positional as time goes on). My headache feels less like a normal headache, and more like a heavy pressure in my head. My brain feels like it is getting weighed down, like someone tied a 50 lb weight to it. It feels swollen and as if it is about to explode. I don't get multiple head aches, its just one continuous head ache that has been here since February. Most of the pain is in the middle to base of my brain, but I also have quite a bit of pain deep in my brain, behind my right eye. It is enough pain to make me want to go to the ER every day but they don't help and give me pain meds which do absolutely nothing.

The head pain is constant and never goes away, I have had the same head ache since February and it has only gotten worse. However, over time I feel my head pain has become slightly less positional and is just always between a level 6-8 pain where as it used to be between a 2-7 pain.

My other symptoms that are secondary to the head pain is nausea, and ringing in my ears.

WHAT I HAVE DONE:
I have tried many different treatments for concussion/ brain injury. I have done:
-over 50 sessions of hyperbaric oxygen therapy
-sensory deprivation tank
- chiropractic acupuncture
-NUCCA chiropractic
-upper cervical spine chiropractor
-physical therapy
-counterstains physical therapy
-cranial sacral therapy
-massage therapy
- cognitive behavioral therapy: counseling
- functional neurology (vestibular and ocular therapy at Imagine X)
- did frequency specific micro currents
-saw a neuro endocrinologist
- pulsed electro magnetic field therapy
- E-Stim at neurofield
-facet injections (MBB block of C2 and C4)
-SPG block
-trigger point injections
-occipital nerve block
-have been to the Amen clinic
- have been to UCLA brain sport clinic
- have been to multiple neurologists, for a second opinion
- have been to a CSF leak specialist
- have been to pain management doctors
- tried meditation
-I also got a blind epidural blood patch to test and see if it was a CSF leak-however it did not help
-saw a migraine surgeon: he did peripheral nerve blocks that did not help

-I also tried numerous amounts of migraine/pain medications that did NOTHING: sumatriptan, rizatriptan, tramadol, topamax, butalbital aspirin caffeine, nortriptyline, memantine, tizanidine, ibuprofen, Tylenol, and a Gamma Core device (and tons of supplements).


SCANS IVE DONE:
Testing for possible CSF leak: I have had a brain MRI with contrast and it showed no signs of intracranial hypotension. I also had a MR mylogram showing no leak and a brain MRA that was clean.

Testing for concussion: MRI with contrast of my brain, MRI without contrast of my brain, MRI of cervical spine without contrast, stand up MRI of cervical spine without contrast, MRA of brain without contrast, SPECT scan, X rays of cervical spine, EEG of my brain, and blood tests done--- all showed clean/normal

I cannot handle this pain. It has been 7 months of unbearable pain that has debilitated me and makes me lay in bed all day. It has caused me to drop out of school and military. Doctors just say I have a migraine because nothing shows up on my scans, but I KNOW its something more. I don't have any cognitive issues such as memory loss, speech problems, balance issues, or concentration problems. I am not sensitive to sound. I literally just have a insanely awful head ache/pain.

Anyone have recommendations they can offer to me or have experienced similar stories?
claynorian is offline   Reply With QuoteReply With Quote