Hi

I was diagnosed with MG about a month ago but based on my health history I probably had it as far back as 2016.

My experience with MG is one of filled with consistent uncertainty. I have Generalized MG so I've been struggling mostly with neck, chest, hips, thighs, calves, hands and feet weakness. When I sit, my head is constantly swaying on its own. When I stand, my entire body sways on its own. Mestinon/Pyridostigmine helps but its not consistent - my body reacts to it differently everyday.

I danced professionally for most of my life and have taught dance for about the same duration so having this disease is both a curiosity and a curse.

I'm sorry to hear about your husband and I hope that you and your son can find a way to keep him in your hearts as you move forward in this next phase of your lives.