I have been diagnosed with TOS by several therapists. Most likely neurogenic combined with some vascular. My neurologist doesn’t believe that this is the case, and has pretty much decided that it can’t be TOS because it’s so “seldom”. She shows no interest in doing the tests the other therapists have done. She had me do a CT angiogram which of course came back showing nothing.

When I raise my arms to a certain degrees I can seriously feel when the blood is cut off, and my hands loose their color a bit. When I lower my arms to a certain degree I can feel the blood rush in again and my hands look funny, I can’t explain what I mean. Not sure if I can post a pic here. Firs anyone else have this?