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Old 09-12-2019, 04:16 PM
JTP1234 JTP1234 is offline
Junior Member
 
Join Date: Aug 2019
Posts: 20
3 yr Member
JTP1234 JTP1234 is offline
Junior Member
 
Join Date: Aug 2019
Posts: 20
3 yr Member
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Quote:
Originally Posted by Wide-O View Post
Well, you asked!

The quotes are because some of the time I'm feeling quite good, and the more I manage my diet and my stress levels, the longer those periods last. But I started out with severe burning, stabbing, feeling like walking on crushed glass, feeling like both feet were broken, someone cutting my soles with a box cutter, and, from time to time, cramps in my toes that make my left foot look like it is going solo and wants a life of its own, big toe bending outwards like it is going to snap off. I can not really "feel" my toes, but when I do it feels like they are encased in cement. I also feel like I just walked 50 miles in bad shoes.

The EMG showed that apart from the suspected PN I also damaged my sural nerves starting a few inches under my knees. (which is part of the poly-neuropathy diagnosis)

The good periods make me feel I should go back to work (I had my own company), the bad ones make it clear I'm not up to it - not even close. I feel a lot better than when I started out, no doubt about it, but that progress stops at some point, which is typical for PN.

So those quotes are doing some heavy lifting.
Thanks for the additional info. Interesting that you mention the progress stops at some point. How long was that time period for you? Was it a few months, years, before you plateaued?

Hopefully it resumes again at some point.
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"Thanks for this!" says:
PamelaJune (09-16-2019)