Thread: Axonal Sensory Neuropathy IgM TS-HDS
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Old 09-16-2019, 03:00 PM
willie13 willie13 is offline
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Join Date: Sep 2019
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3 yr Member
willie13 willie13 is offline
Newly Joined
 
Join Date: Sep 2019
Posts: 3
3 yr Member
Default Update on steroid infusions?
I also just got this diagnosis and my doctor wants to go straight to steroid infusions. Do you have any updates on if this helped you?

I have horrible pain, brain fog, burning, cramping, and I have breathing difficulties. I am so desperate for some reflief.

Thanks in advance.




Quote:
Originally Posted by Hahndoghotcakes View Post
Hi,
I have recently been Dx with IgM TS-HDS as well. My hand pain is excruciating and my toes are begining to go numb. Yesterday I heard that BCBS has denied IVIG so come Monday I will be starting IV steriod INFUSIONS every day for a week and then 1x a week for 6 weeks. I am NOT looking forward to this treatment! Hoping after this treatment insurance will accept on appeal.
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