I also just got this diagnosis and my doctor wants to go straight to steroid infusions. Do you have any updates on if this helped you?
I have horrible pain, brain fog, burning, cramping, and I have breathing difficulties. I am so desperate for some reflief.
Thanks in advance.
Quote:
Originally Posted by Hahndoghotcakes
Hi,
I have recently been Dx with IgM TS-HDS as well. My hand pain is excruciating and my toes are begining to go numb. Yesterday I heard that BCBS has denied IVIG so come Monday I will be starting IV steriod INFUSIONS every day for a week and then 1x a week for 6 weeks. I am NOT looking forward to this treatment! Hoping after this treatment insurance will accept on appeal.
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