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Old 09-16-2019, 11:51 PM
SAHOL78 SAHOL78 is offline
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Join Date: May 2019
Posts: 11
SAHOL78 SAHOL78 is offline
Junior Member
 
Join Date: May 2019
Posts: 11
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Quote:
Originally Posted by Dontbeamelvin View Post
Same thing happens to me, but truthfully this happens to a lot of people without TOS too. It seems to slowly be getting better but my affected side would often be a lot colder and take longer to warm up etc. I never really had swelling or anything which is what would be really concerning.
Hi! So itís not just me! My neurologist doesnít seem to believe me. My arms get so exhausted when I use them, but surely thatís not odd if there is little blood in them? My hands get ďblotchyĒ when I lower my arms, but also sometimes when Iím just sitting still or if I lay on my side. I donít have any swelling either, so that is good. They did a CT with angiogram which shows absolutely nothing, so I wonder why I feel like the blood leaves my arms and hands? Kjetil Larsen did a Doppler on a vein in my neck, this shows that the blood flow is down to 50% in neutral position and down to 30% in a provocative (halstead) position. This didnít show on CT though. My neurologist doesnít believe him since he isnít a doctor, but she wonít send me to someone else to check either. Guess Iím going to have to get a new neurologist..
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