Quote:
Originally Posted by Dontbeamelvin
Same thing happens to me, but truthfully this happens to a lot of people without TOS too. It seems to slowly be getting better but my affected side would often be a lot colder and take longer to warm up etc. I never really had swelling or anything which is what would be really concerning.
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Hi! So it’s not just me! My neurologist doesn’t seem to believe me. My arms get so exhausted when I use them, but surely that’s not odd if there is little blood in them? My hands get “blotchy” when I lower my arms, but also sometimes when I’m just sitting still or if I lay on my side. I don’t have any swelling either, so that is good. They did a CT with angiogram which shows absolutely nothing, so I wonder why I feel like the blood leaves my arms and hands? Kjetil Larsen did a Doppler on a vein in my neck, this shows that the blood flow is down to 50% in neutral position and down to 30% in a provocative (halstead) position. This didn’t show on CT though. My neurologist doesn’t believe him since he isn’t a doctor, but she won’t send me to someone else to check either. Guess I’m going to have to get a new neurologist..