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Old 09-18-2019, 07:54 PM  
Newly Joined
Join Date: Sep 2019
Posts: 1

Originally Posted by willie13 View Post
I also just got this diagnosis and my doctor wants to go straight to steroid infusions. Do you have any updates on if this helped you?

I have horrible pain, brain fog, burning, cramping, and I have breathing difficulties. I am so desperate for some reflief.

Thanks in advance.
My daughter just got the diagnosis of TS-HDS this summer. She just started steroid infusions. From what I can understand it appears to be a hoop we have to jump through to have insurance approve IVIG. We are doing infusions every 2 weeks.
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