Originally Posted by sdm11

Hi everyone, I'm new to the group. About a year ago, my feet started getting hot when I walked around a while. This progressed to the point where they get hot when I walk a lot or workout, or am in a hot room with shoes on, etc. Not too bad a symptom, and I've learned to live with it. Until recently, this was my only symptom. I had a negative EMG and got a QSART (negative) and skin biopsy. The biopsy was technically negative for SFN but very close to the margins, so my neurologist basically thinks I have very minor SFN. He's suggested starting on very low dose Gabapentin (100 mg at night) and progress to a still low does (300 mg at night) to see if it helps. I'm also on B complex, Alpha Lipoic Acid, Magnesium, Potassium, and Turmeric, along with a multi vitamin. Also trying out CBD oil. I don't have diabetes and the blood work came back normal. I've stopped alcohol. I have never been an alcoholic, but have been a fairly heavy drinker because I love and collect wine.

I recently had a new symptom that I think is related to the SFN, although not sure. Now, whenever I got hot (either from being out in the warm weather or working out) my back gets itchy and slightly painful pins and needles all over. It's really uncomfortable and very worrisome that the SFN is progressing. If this goes on, I won't be able to be outside in warm weather, which is scary for quality of life. Does anyone have these same symptoms???

I know there is a lot of frustration with general neurologists and how they deal with SFN on this board. Does anyone know of a great neurologist who specializes in SFN or at least PN and would be a real help to try to find causes or at least new and experimental treatments, rather than just prescribing drugs like Gabapentin? I have the resources to travel to the very best doctor if there is such a thing...the internet isn't much help in that respect.

Thanks everyone for your help!