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Originally Posted by dawnptl
I've been diagnosed with Fibro, CF, IBS, Hormone Imbalance, and suspected of having Lyme disease. Have read the most about Lyme, and now I am starting to find out more about Fibro. Thanks for the information from the conference! I was especially interested to hear that chiropractic and massage help very little.
I have needed chiropractic adjustments for 7 years, almost every day at first, now a couple times a week. I suspect the Lyme bacteria has damaged my ligaments, and has compromised my ability to hold my adjustments. Has anyone else ever had this problem? I have tried so much, and am tired of being in this frustrating cycle. The pain and muscle tightness gets debilitating if I don't go back in for relief. ANY HELP OUT THERE?
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Hello! I have had FM for 20+ years and was diagnosed this year with Small Fiber Neuropathy (SFN) with TS-HDS antibody (and many more issues). I was tested three times between Neurology and Rheumatoid Arthritis doctor for Lyme disease and it was negative. However, I did test positive for Rocky Mountain Spotted Fever (took 10 days of Doxycycline and supposedly it's gone...) and Alpha Galactose (red meat allergy) - both from tick bites, and likely from years ago when I did more camping. The SFN was validated by a biopsy from my lower and upper leg. It also gave extra validation to my FM. Is it possible you can discuss these other tests with your Neuro?
Also, I changed chiropractors on advice of my orthopedic specialist to a chiropractor who tests and reactivates the muscles that don't want to work properly - for me these are my glutes and lats. I also attend physical therapy there. I learn simple exercises to help me keep up or reactivate muscles and just recently added strengthening. This could mean doing only 5-10 reps because exercise exacerbates other conditions I have. I love a massage even if it's just all about an hour of relaxation. I call it my reset switch! Be your own advocate! Best of luck!