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Originally Posted by britt9138
yes I am here....they are in stage 2 of clinical trials at harvard deaconess in boston using sodium chloride+ infusion. My issue is balance and gait
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I contacted someone about small fiber neuropathy with TS-HDS (20,000) IVIG trial in Boston, but it was first run, didnt cover the 8-9 travel visits from NC and 50% chance of placebo. I have additional idiopathic neuropathy (etc.) and autoimmune issues. Lots of pain, fatigue, numbness, ice cold knife-like pain.
Meanwhile, Id like to hear your pros & cons for the 750 mg methyl prednisone @ 1 hr X 3 Days then do this monthly if it helps. Did you have downtime? Worries about getting sick, hyper, etc. My local RA has reservations of complying with Duke neurologists request due to adverse reactions of other patients. Thanks in advance.