Hi sien
Welcome to NeuroTalk

.
I am sorry to read about your small fibre neuropathy. The forum here which covers it (
https://www.neurotalk.org/peripheral-neuropathy/) is very active so I am sure that if you share your story there you will get lots of support and good ideas from other members.
Apart from that you can use the Search option (
https://www.neurotalk.org/search.php) to find topics here which may help you.
All the best.