Good evening!

I'm new here and have a few questions and hoping someone can help. I'm awaiting MG test results (8 days and counting).

Is there anyone who has MG but without the drooping eyelid(s)? I have what I thought was a drooping eyelid, but went to the eye doctor and she did the cold test and the one where you look up for 2 minutes and said nope.

My main complaint at the moment is fatigable muscles (bilateral). Like right now I'm having to hold my arms up a bit to type on my laptop which is positioned too high and they're getting tired. It's mainly been my arms, but in the past I've had weeks-long episodes of leg weakness as well, to where just the thought alone of walking to my car in the parking lot at work wore me out, or where I'd have to forgo a trip to the store. My ankles are also involved on a more consistent basis like my arms.

My back muscles also are easily fatigued, at the sides of my torso along the back. I never realized how much those are used - like when cutting potatoes or mopping the floor - they get weak along with the arms.

In the summer I feel like I'm being tortured because I have extreme fatigue all day (sleepy), and then the muscle fatigue gets worse to the point where I mess up my typing (fingers), my lower arms and legs often ACHE, and just sitting makes my legs feel weird/tired. When I get up from sitting i'm bent over. When the temps begin falling to the low 80s, I'm like a new person, but I do still have the muscle fatiguability upon exertion. It's hard to mop my floors, or vacuum my couch - ouch. Once i was painting a shelf and I suddenly had to stop because my hand/wrist eventually just gave out. That was in February when it was cold.

I do recall getting very noticeably tired of chewing on occasion.

Is it possible to have this for a very long time but be "stable"? I"ve had weak hands/wrists and seemingly ankles for perhaps 20 years, and always thought it was due to nerve damage from a neck herniation I had back then, but an EMG (regular) was done and the neuro said no - it's not your neck. This weakness made me unable to bowl (drop the ball), play tennis, or basketball very well anymore, and I was always pretty athletic. I also can barely open a bag of chips.

Like most people I've had all sorts of tests and i gave up for 3 years but now am back at it because i feel i'm getting worse as far as the muscle fatigue. My pcp mentioned mg and ordered the tests.

Is it true that there aren't too many other possibilities when it comes to muscle fatiguability? I need a dx because being single I worry what happens if I can't work and I don't have dx? I'm the only one paying the bills. I also get occational stabbing pains and have a history of other parathesias as well as episodes of hip and low back pain (excruciating). If it's MG i certainly don't want to be a sero-neg ughhhh. If so I guess back off to the neuro I go.

I"m very sleepy at the moment so i'm sorry if i'm all over the place. I welcome any input on my symptoms or questions.