Quote:
Originally Posted by nikos
I get an IVIG every 4 weeks and it has kept me pretty normal for several years. Recently I have been experiencing pain/achy in my hands and after standing for an hour or more pain in my back and weak neck. These new things go away if I sit down and rest. Does this sound like MG or something else?
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I'm not diagnosed but you can view my symtoms in my new post. I have had low back pain upon standing, shopping, walking on hard surfaces for more than an hour since age 19-20. I have a history of spine issues but no doctor has had any idea why that would be, based on my MRIs etc. I have had less issues when walking say on a dirt trail, but not for too long because then it would show up and I'd end up being a drag on a group. In fact recently I joined a group for a hike and got scared because my ankles felt weak and we were in a path where I could end up going down the side of a hill.
i now suspect it may be weakness-related because it always seemed worse when I wasn't in the habit of exercising. Now I can't really exercise too much because my muscle fatigue is worse.