Junior Member
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Join Date: Sep 2009
Location: Suburban Detroit
Posts: 79
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Junior Member
Join Date: Sep 2009
Location: Suburban Detroit
Posts: 79
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I’m sorry you are feeling so bad. Although I’ve been here for awhile, my MG is mild and I tested positive for achr antibodies.
Flares can be common, and heat can exacerbate MG. Your profile doesn’t state where you live, but my guess is that if you live in the US you are probably in Florida. Stay in A/C as much as possible.
You can still have MG and test negative for the tests you have taken. If you do get Mestinon to try, make sure that you don’t take it if you have further blood work. It could mess up the results.
This was a more active group, but one member hasn’t been here for awhile. She was a nurse. If you can look up threads by person, check out posts from AnnieB.
Good luck in figuring this out, it can take a long time and many doctors. Jim
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