Senior Member
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Join Date: Apr 2009
Location: Stafford, UK
Posts: 1,059
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Senior Member
Join Date: Apr 2009
Location: Stafford, UK
Posts: 1,059
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14 years post-diagnosis and I'm optimistic about my PD future.
That's not because I think that a cure will be found in time to help me. It's not because I think that big-pharma will start doing the right things for the right reasons. It's not that I think I will get better care from the medics. No, I think that I'm able to better manage my day-to-day problems than I was.
For instance, I've never had any dyskinesia. I put that down to a drug regimen which reduces the magnitude of the changes of levodopa and equivalent levels during the course of the day. This means smaller, more frequently doses, and longer half-life meds. (5x75 mg Stalevo, 8 mg ropinirole CR, 1 mg rasagiline
For many years constipation was my worst PD symptom. Last year I found a way of reducing its effects greatly: water enema, macrogel. This allowed me to travel to Canada for the first time in 6 years.
Last, but not least, I walk, and I walk ...
To be clear, I don't think that these techniques will work for everyone. No, of course they won't. But, I think that most of us could find something that, if only temporarily, made our life better.
John
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Born 1955. Diagnosed PD 2005.
Meds 2010-Nov 2016: Stalevo(75 mg) x 4, ropinirole xl 16 mg, rasagiline 1 mg
Current meds: Stalevo(75 mg) x 5, ropinirole xl 8 mg, rasagiline 1 mg
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