Hello!

I have recently been told I have CRPS. As a result I have found this forum and I have been reading posts after posts to try and find something that would be of help. I understand that every person with this is different and every case is unique. However I'm having a hard time with how or why I have been told CRPS. Everywhere I've read has said it starts with a limb...

I'm going to try and give you a short version of my story in hope that someone could maybe help.

In April of 2017 I had a surgery to remove my fallopian tubes and a potential cyst in my right ovary. It was suppose to be an in and out the same day surgery. I wasn't afraid or nervous as I had had a surgery to remove my gallbladder when I was 10. However when I woke up from surgery I had the worst pain in my life in my shoulder they gave me 3 or 4 different pain meds and it still didn't seem to help. Finaly it calmed down but they admitted me for pain management for 2 days. A week after that I started to get a pain in my right rib. Right under the breast. I went to the ER for a different reason and had mentioned it to them but they shrugged it off as a normal surgery pain. The next week I had severe pain in my rib I could barely walk, stand or lay. I wasn't sleep more then 20 mins at a time at night. I went and seen my family doctor and he prescribed me T3s and after about 2 weeks of taking them I felt better and went off them. Didn't feel the pain again unless I did a little more during the day than normal. September came and my kids went back to school so I started to go to the gym again. First time I went I got very sick and just thought I went to hard after being away from the gym for so long. The next 2 days I took it easier but I got very sick..flu like sick. So I quit going and mentioned it to the doctor. In October I went out with my husband for his birthday and when we got to the restaurant I started getting sick like I would at the gym. I took my T3s and thought about going to the hospital but by the time we left I started to feel better as the T3s started to work. After that my pain started to get worse and I had to start paying attention to the warning signs of when it was going to come on so I could take my T3s before I got to the flu like symptom stage. I did many tests with my doctor and last year I started to see a nerve pain specialist. He gave me an injection and it made my symptoms worse and told me he couldn't do any more as he didn't want to make it even worse.

I have bad allodynia, I can't wear over half my clothes anymore as they can bring on these flu like symptoms, I also can not wear a bra anymore, I can't sit in certain chairs, I absolutely can not get hot at all. I no longer wear a winter coat or I get sick. I recently started to get a chemical like rash on my face off and on. It burns and is hot to the touch.

The pain from my rib has spread to my spine and into my left side off and on.

Mine all started in my rib. However where ever I read it says it starts in a limb. Why is mine in the rib?
I've also only read about people having issues with cold but none with heat. I have read it is possible to have the heat one but is it more rare?

I also want to note that before the 2017 surgery I was having problems with my right arm. I had pain and numbness in it off and on, but it wasn't a bother. I took a fall on it about a month before the surgery and hurt my arm and collarbone. My collarbone if I'm not careful will feel like I pulled it out and be in pain for days. However my arm still feels the same as it did before the surgery minus the allodynia that I have in it now.

I feel like I'm going crazy trying to figure out how I fit into the CRPS title. Maybe it started in my arm and no one realized?

I'm sorry if I'm all over the place.
If anyone could help I would be so grateful l!