Thread: Newly diagnosed
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Old 01-25-2020, 05:45 AM
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CRPSbe CRPSbe is offline
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Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
CRPSbe CRPSbe is offline
Member
CRPSbe's Avatar
 
Join Date: Mar 2009
Location: Belgium, Europe
Posts: 832
15 yr Member
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First of all, welcome here.

There's lots to wade through, I'm sure; and the way RSD/CRPS is treated varies so much, so so much over the world.

If you haven't gone to a pain specialist or clinic, I would highly recommend it. They *know* CRPS, they aren't "just" there for the pain. That is one big myth.

I had to get over that hurdle myself. Because it feels like you are running out of options, when they actually give you options not to just treat the pain but also potentially treat the condition itself.

I'm thinking bisphosponates for instance.

Anyway, I just wanted to quickly pop in here and say "hi"!

Good luck!!!
& Hang in there!!!

You are not alone in this.
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All the best, Marleen
=====================
Work related (car) accident September 21, 1995, consequences:
- chondromalacia patellae both knees
- RSD both legs (late diagnosis, almost 3 years into RSD) & spread to arms/hands as of 2008
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