Quote:
Originally Posted by Evon
Steve and Chris, we seem to be on the same page. Same age, dxs at approximately the same time and having trouble with dystonia and fatigue. I am currently taking Sinemet 25/100 4 x a day, and 14 mgs. of requip a day. In April my MDS switched me to 4 x a day because I had end of dose dystonia after about 3 hours. I push myself to do too much and often feel that I have over done it. Chris, you will probably find you do much better now that you aren't going to work. Stress is not a good thing besides you should take time for yourself now. I find that sleep and exercise have a great impact on how I feel, we need lots of both.
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Evon
You are right about same page, I also take 4 x 125 Madopar (similar to Sinemet) a day, plus 2 x 100mg Amantadine and I am about to add a low dose of Mirapex to hopefully ease the end of dose dystonia.
Too tired to exercise while I was working so hope this will change now.
Need to get myself as well as possible as am going on a Med cruise in August - first time I will have been abroad since dx and nervous about it to say the least. More than anything i hate the fatigue.
At least when I start Mirapex I have the gambling/sex/shopping obsessions to look forward too ...............................
Chris