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Old 02-17-2020, 01:43 AM
InPain1234 InPain1234 is offline
Junior Member
 
Join Date: Feb 2020
Posts: 8
3 yr Member
InPain1234 InPain1234 is offline
Junior Member
 
Join Date: Feb 2020
Posts: 8
3 yr Member
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Jo*Mar,

Thank you so very much for your reply, I appreciate your thoughts.

My Chiro doesn't use any type of low level laser. He does use Inferential stim, which feels good on my back due to all of my laying in bed, although it does nothing for my legs or feet though. I did ask once about where he got it, thinking I could use one at home and he said they're far over-priced to the average person and suggested I try a TENS unit. I did try that on various muscle groups to no avail, unfortunately.

I have tried acupuncture in the past as I've heard others say it really helped pain of various origins. For me, it did nothing and I awoke to bruises the next day.

I did try a naturopath about a year and a half ago, that didn't help me, either. I followed all of her instructions, took so many vitamins prescribed for months and still couldn't ambulate or get out of bed due to pain. She eventually told me that she'd release me of treatment as she didn't want to "take my money."

I have never heard of a bodyworker. I'm assuming it's similar to massage therapy? If so, I've gone to massage therapy for myofascial release, deep tissue and recently tried a CBD oil massage to see if it may take away some of the pain and still, nothing. It feels good while she's working on me but as soon as I weight bear, the pain returns.

I have not tried MSM and will give that a shot, as well as grape seed extract, in which I have heard of both. I already take a Calcium/mag blend which doesn't offer any relief.

If these ideas that I was given at the Cleveland Clinic here for muscle spasms, please try them to help your muscular pain. One of the Neuromuscular doctors that I had seen told me that many of his patients that suffered from ALS, Stiffman Syndrome and various disease that had to do with dystonia and severe cramping reported back that the use of Ivory soap within your sheets did help to some degree at night, as well as using a product called Hyland's Leg Cramps, which comes in a tablet or cream form did help many suffering from the above diseases, as well as many others involving spasming or cramping of muscle. I hope this helps someone.

Thank you for suggesting Chronic Myofascial Pain. I dd some research today and found it to be interesting and possibly pursuing. When I do go to Massage therapy, she's always telling me that my muscles don't feel like those of others. She states they have a very ropy and taut feel to them. The last time I had seen her, she said the peroneal muscle where the tendon inserts into was particularly bad. She worked on it for about 30 minutes and just couldn't loosen it up. I often wonder if this is a factor in having peroneal tendonitis. I will research this further and possibly get in to see a therapist or rheumatologist. In my research though, it seems as though information is so conflicting with some sites stating that swelling is prevalent with this whereas others say it's not. I'll have to dig a little deeper, but thank you for that suggestion.

I do apologize if anyone on the forum was offended by my presence here without a diagnosis. I've read the forum for quite some time wondering if this could possibly be why I can't walk and am in such horrible pain. I didn't decide to register until several doctors suggested revisiting the CRPS specialist to rule it out again since it's been a while and my pain has worsened dramatically to the point of being disabled. I'm told that plans are of sympathetic blocks and possible epidurals.

Again, I really appreciate your response to me and if anyone else has any thoughts or avenues to suggest, I'd appreciate it.

My best to all of you
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