So very sorry you are going through all this, I can’t even imagine! Have they evaluated you for a CSF leak? A CSF leak can cause some of the symptoms you’ve described. They are very difficult to diagnose. An MRI with and without contrast might show slight brain sag or meningeal enhancement, or might be normal. A CT scan with contrast might show a leak. A blood patch can also be a diagnostic tool. There’s no doubt it’s brain related and I sure hope they get you a competent neurologist that will test and test to find answers!!