I hope everyone is doing well. Me? Not so much.

Besides caring for my mom, who had to go into a nursing home in 2016, I have had a bunch of new things come up due to insufficiently treated MG.

My MG has become worse. Due to that, I have had hypoxia at night for who knows how long now. I have O2 every night, which helps. But I also have "unidentified bright objects" or UBOs (like UFOs—lol) in my brain (brain damage). I have pulmonary hypertension, which might get better with oxygen. Hypoxia causes PH.

So, if your MG is not doing well, please have a sleep study or an overnight oximetry. Hypoxia can damage tissues all over the body. And if your breathing is worse, don't assume MG is causing that. See a cardiologist.

If any of you do need oxygen at night, just know that you are at the mercy of a previous owner of an oxygen concentrator. Medicare and other insurance companies only rent them. I can't deal with smells, etc. so I was forced to buy a new one. Glad I did.

I missed you guys. Life has just been nonstop shtf.



Annie