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Old 04-22-2020, 12:39 PM
tyler123452 tyler123452 is offline
Junior Member
 
Join Date: Dec 2018
Posts: 7
5 yr Member
tyler123452 tyler123452 is offline
Junior Member
 
Join Date: Dec 2018
Posts: 7
5 yr Member
Default Unknown Diagnosis

Hello! I was healthy until I was 20 (May 2013). I now have an extensive health history, and I’m wondering if anyone out there has anything similar, or any ideas fabout what I’m experiencing.

I’ve seen a lot of medical professionals and have had a lot of tests done to try and diagnose my condition and treat the symptoms, but no one has found anything that would explain all of my symptoms.

I’m going to outline symptoms that I feel are part of an undiagnosed condition. The goal here is to get insight from the community about what the underlying condition could be. I have:
Chronic leg pain and lack of normal function for a 27 year old: I can’t run; I sometimes have trouble walking on uneven surfaces and trouble biking.
Sensitivity to pressure being put on various body parts: My hip gets irritated from laying on my side. My knees hurt when I kneel, sometimes even on a soft surface.
Trouble sleeping: This is due to several factors, one being not finding a comfortable sleeping position. My muscles in glutes and hips often tighten to a point where I have to get up to make them release. I also have anxiety and my concussion symptoms (at the bottom of the list) that affect my sleep.
Difficulty overcoming simple injuries and strange reactions to injuries: I hit my right knee on a rock in May 2014 and only received a minor contusion, but it became painful to bend my knee and got to the point where I had to use crutches. (Some of the pain was in the back of the leg, not at the injury site). It tooks about 3 months for my leg to feel relatively normal again, but this knee has had more pain and stiffness when kneeling than the left knee ever since then.
My PT showed me a towel rub exercise a couple years ago. You rub a sensitive part of your body with a towel and other objects. I do it on my left calf sometimes, and when I do my toes on my left foot curl in. I’ve also tried it on other body parts, and something typically clenches (feels like the muscle is contracting) and twitches near the area I’ve rubbed.
Relaxing my muscles causes them to twitch a lot.
The clothes I wear sometimes impact how my body feels: I often have more pain in my right hip flexor, outer hip, and glute when wearing tight pants. When I put shorts or sweatpants on instead, my legs feel better- less achy, and they can move more naturally.

*Note: I had all of these above symptoms before this concussion. I don’t want people to specifically focus on the concussion, but I feel it’s important to add to my symptoms because I am not recovering from it. I used to recover from injuries “normally” when I was younger, but that isn’t the case any more.
Post Concussion Syndrome: I’ve had a few concussions in the past where I’ve recovered quickly, but I hit the back of my head in September 2018 and have had concussion symptoms since: sensitivity to light, a “full” feeling in my head, hard to concentrate for long periods of time, can’t look at screens for too long (my wife is writing this for me!), vestibular and vision/ambient vision issues, etc.

I’ve seen neurologists, foot and ankle specialists, PMRs, PTs, OTs, VTs, had various MRIs, X-rays and EMGs. I feel like each doctor is looking at one puzzle piece, but not putting the puzzle together. If anyone out there sees a whole picture, please let me know. Thank you!
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