View Single Post
Old 04-24-2020, 02:02 PM
agate's Avatar
agate agate is offline
Senior Member
 
Join Date: Aug 2006
Location: Wild West
Posts: 1,009
15 yr Member
agate agate is offline
Senior Member
agate's Avatar
 
Join Date: Aug 2006
Location: Wild West
Posts: 1,009
15 yr Member
Default

Hi 04NeuroAtrophy+, and welcome!

I'm afraid I can't suggest anything helpful for you except to say that it sounds as if your neurologist is trying to find out what's going on--and hasn't indicated that you're just making it up.
Sometimes family members find it convenient (for themselves) to say you're "just faking" but please keep in mind that they probably don't want to have to be concerned about you or to make special arrangements for you, as they might feel they would need to do. They're protecting themselves, without thinking about how much they're hurting you with their attitude.

If they think you're just making it all up, they can go on with their lives and ignore you. Very handy for them.

There's not much point in debating the issue with them. All you can do is proceed with your neurologist and the tests you might need--possibly go to other doctors if that seems called for--until you can come up with some solutions.

Other people will probably come along with more helpful ideas for you.

Just in case some of your readers don't know these abbreviations:

DJD in your Profile - degenerative joint disease
OSA - obstructive sleep apnea
__________________
Repeal the law of gravity!

MS diagnosed 1980. Type 2 diabetes, osteoarthritis.
Avonex 2002-2005. Copaxone 6/4/07-5/15/10. Currently: Glatopa (generic Copaxone), 40mg 3 times/week, since 12/16/20
agate is offline   Reply With QuoteReply With Quote